hosp went well today, going to go into hosp for 2 overnight stays 1st night video eeg second night nurse observation so pray those nights are really bad so they can figure things out if not we'll keep doing it till we get bad nights xx
gonna wean off clobazam starting tomorrow then add another to try and help fits pray this helps also
still no further forward on keto damn hospitals but we'll get there eventually
still having those scary seizures wee soul but we go on every day trying to make things better and who knows we may even get to the light at the end of the tunnel xxxxxxxxxxx
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