ok again its been a while x mummy has been so busy with me and she has also been unwell but she ok now xx silly flu xx so not much happening my end really started the ketogenic diet not much change tbh but its early days still been extremely quiet which mummy isnt happy about but other than that all is ok xxx |
Sunday, 8 November 2009
8.11.09
Sunday, 4 October 2009
well after a few weeks almost seizure free (only had 1 or 2 every few days sometimes longer) i think things are getting back to how they were he has had 10 tonic seizures today :( but well i guess you cant have everything hey x otherwise he is on good form since he got over his bug which took a week he has been happy smiley and full of love and kisses which has been special xxxxx
Thursday, 17 September 2009
well once again i apologise for the gap in updates but well im forgetful lol and to be honest most of the time nothing changes xx
james has had a rough ride lately a couple of weeks ago his seizures were just awful and he ended up in AnE in pretty bad shape and needed several meds to sort him out !!! it was a very scary time for me and james's dad i can honestly say i have never been so terrified in all my life they were talking about hdu and if they couldnt stop the seizures and had to keep giving him meds he could possibly need venting as the meds are all muscle relaxants and there are always risks it was extremely scary xxx
since then he has been much better his seizures are very minimal but on the downside he is extremely quiet which always worries me especially when i know how vocal he can be xxxxxx
james has had a rough ride lately a couple of weeks ago his seizures were just awful and he ended up in AnE in pretty bad shape and needed several meds to sort him out !!! it was a very scary time for me and james's dad i can honestly say i have never been so terrified in all my life they were talking about hdu and if they couldnt stop the seizures and had to keep giving him meds he could possibly need venting as the meds are all muscle relaxants and there are always risks it was extremely scary xxx
since then he has been much better his seizures are very minimal but on the downside he is extremely quiet which always worries me especially when i know how vocal he can be xxxxxx
[IMG]http://i326.photobucket.com/albums/k406/marisa81xx/116499403r116499417.gif[/IMG]
Friday, 28 August 2009
well all in all .things are ok had a bad day today seizure wise ended up having his rescue med at lunchtime poor soul xx
had eye hosp today so he doesnt need to wear his glasses anymore squint still the same but always is and more so today as he was having a lot of seizures xx
have talked previously and again today about an op to straighten his eyes not sure how i feel about it doc isnt comitting but says because of liss and seizures it may not help or could for a while
if anyone has experience of this id appreciate ur thoughts would appreciate them even if u havent been there xxx
had eye hosp today so he doesnt need to wear his glasses anymore squint still the same but always is and more so today as he was having a lot of seizures xx
have talked previously and again today about an op to straighten his eyes not sure how i feel about it doc isnt comitting but says because of liss and seizures it may not help or could for a while
if anyone has experience of this id appreciate ur thoughts would appreciate them even if u havent been there xxx
[IMG]http://i326.photobucket.com/albums/k406/marisa81xx/116499403r116499417.gif[/IMG]
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